Eucharisteo
A Greek word meaning to be grateful, feel thankful,
to give thanks.
For this little one...today.
It's been a year of doctor visits and tests
and pokes and pricks
and tears and unknowns.
But today, eucharisteo.
Today we finally have answers.
And the puzzle with the missing piece,
that had even left his endocrinologist baffled,
is now complete.
We are so thankful to all of you who have lifted Logan up in prayer
this past year.
You have been a blessing as we've waited for answers
to all the unknowns regarding our son's medical condition.
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Today it was confirmed that Logan has
Congenital Adrenal Hyperplasia (CAH).
CAH is a coverall name for a variety of adrenal disorders.
It's a genetic condition where the adrenal glands, located above his kidneys,
aren't producing the much needed cortisol hormone.
His doctor was absolutely stumped,
because Logan wasn't showing any of the typical symptoms of CAH.
The answer finally came with the most recent lab tests.
Logan's form of CAH is incredibly rare.
His adrenal gland compensated for the cortisol deficiency by robbing
another part of his body for the needed hormone.
(He's quite resourceful, this little one of ours.)
If his body continues to do this, it will lead to hypertension,
and eventually health problems, such as heart disease.
Logan's treatment will include cortisol replacement medication
three times a day for life.
And we are incredibly thankful for this medication.
He will require stress dosing of his medication when he is sick, has a fever and during surgery.
We will also need to carry an emergency injectable stress dose with us at all times. This would only be needed if he has an adrenal crisis.
Logan will also need to wear a Medic-Alert bracelet.
Our brave, little guy will also need to undergo a series of surgeries,
beginning in January.
We are grateful, we are thankful.
"Rejoice in the Lord always. I will say it again: Rejoice!" Phillipians 4:4
We are rejoicing!
We rejoice because of the medical care that is so freely available
here in our country.
We give thanks because our sweet boy will live a full life
with the help of this medication.
We are grateful for the wisdom of his doctor
because
we know the complications of this medical condition.
Lia had CAH.
Our precious girl was sick and didn't receive a stress dose.
We know what can happen if CAH is not properly treated.
So today we are so very thankful to finally have a diagnosis.
We are thankful for the wisdom and direction
given to Logan's doctor by our Heavenly Father.
And we are thankful for the treatment plan
that is now in place.
Eucharisteo.
